Even after successful transplant of stem cells from a donor, discharged patients can experience serious and sometimes life-threatening problems as well as complications such as infections and rejection responses. Furthermore, their overall sense of wellbeing is markedly reduced through, among other things, drastic reductions in quality of life and physical resilience. A further problem is that centers in which the patient can be properly cared are sometimes difficult to reach, while in sparsely populated regions there may be no specialized service for hematological care available.
It therefore makes sense to set up communication and information links to the patient in order to identify problems promptly and effectively and be in a position to address them.
Within the framework of the project, in addition to the regular care program, a mobile solution will be used for more intensive gathering of feedback on symptoms and state of wellbeing. Through this continuous recording in the form of a mobile medical diary, early action can be taken in response to possible problems and complications as they arise. The information will be assessed by a so-called ‘pilot’ at the hospital and discussed amongst the team of physicians and other healthcare specialists (physiotherapists, psycho-oncologists). Concrete recommendations can then be implemented or forwarded to the physicians-in-charge on site.
Beside the regular questionnaires concerning quality of life and recording of symptoms, individual aspects of training are worked through with the patient. This program is run in cooperation with the Department of Sports Medicine at Dresden University Hospital.